My Pregnancy with Eczema - Updated

2/16/19 update: 2 years after my first pregnancy, I’ve realized I was probably going through Topical Steroid Withdrawal (TSW). Read more about it on my post about my second pregnancy. Below’s post is unedited and how I reacted to my first pregnancy at the time.

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I  gave birth to my first baby 15 months ago after a roller coaster pregnancy full of challenging eczema flare ups. True, I'm a chronic eczema fighter, but my ten plus years of eczema did not compare to the eczema I experienced during my pregnancy. 

1. My Eczema was Pregnancy-Induced

For the first few months of my pregnancy, I blamed the disruption of my eczema treatment for the severe flare ups. When I wasn't pregnant, I used acupuncture and took herbal pills to control my eczema, but I had to stop both when I became pregnant.

Months later, I changed my conclusion: my pregnancy itself was the reason for my severe eczema flare ups. Maybe it was the pregnancy hormones or my body reacting to the changes in my body, but I blame my pregnancy for causing eczema. 

2. Doctors Told Me Steroids are Safe and Okay

My OB/GYN doctor told me that I could take a steroid pack to help handle my eczema. According to my doctor, this medication does not cross the placenta, so is fine.

What a relief I felt! I almost got a steroid pack, but then ...

 

3. Doctors Told Me Steroids are Dangerous and Not Okay  

All my other doctors - allergists, general physicians, even my pharmacist scared me away from taking oral steroids. They all resorted to "ask your OB/GYN," because it seemed they didn't want to be held accountable for a formal recommendation. Ultimately, I didn't take any oral steroids while I was pregnant.

4. Second Trimester: Horrible Eczema

Months four through six were the worst for my eczema, although it started in month three. By "worst," I mean the worst eczema I've ever had in my life. It was the worst few months I've ever experienced, complete with debilitating, leaking eczema all over my face and body that didn't even let me sleep for days at a time. There was edema, weeping, flaking, redness, hot, dry, full of lines. My recovery was swift, hard to believe and with no explanation. After 3 - 4 months of all-consuming eczema, my skin cleared up. Redness went away. Swelling went down. Al the lines on my face left, so I looked 20 years younger. And no more oozing. I could finally sleep. 

During the fifth month, my eczema drastically improved on its own, similar to how morning sickness goes away during the second trimester. It felt good to finally shift my attention to the little baby I was baking. 

5. Last Weeks of Pregnancy: Eczema Returns, Not as Bad

Late in my third trimester, my eczema came back, although it was not as severe.

6. Giving Birth with Eczema

My skin didn't look or feel great when I went into labor, but it at least my body and face didn't feel like a statue. My eczema didn't get in the way of my giving birth, thankfully. And my husband and I welcomed our first child!

7. Post Birth: Eczema and Medication

After being shamed by doctors to not take steroids while pregnant, I kept battling my eczema without much help. However, I went straight to the pharmacy to pick up my Prednisone pack as soon as I gave birth. Unfortunately, my pharmacist lectured me for taking oral steroids while I was breastfeeding. I have no words for that. 

After I gave birth to my daughter, my eczema stuck around. My face looked purple when I took her to baby yoga. My skin wasn't as horrible as my pregnancy's second trimester, but it was definitely not good. It has since turned around and my skin is beautiful, with only mild-to-moderate eczema due to my getting a new allergist and starting Dupixent and Protopic earlier this year.

8. Getting Pregnant Again

Today, according to my OB/GYN, I can stay on Protopic if I get pregnant again. Dupixent, however, is not safe. I took my last Dupixent injection two weeks ago. I will stay off it for about 3 months, then will start trying to get pregnant again. I'm more terrified than excited at this point and am keeping my fingers crossed that my second pregnancy produces another healthy, beautiful baby, but without the eczema torture this time. 

 

 

One Week After My First Dupixent Injection

Drum roll, please  ...

NOT MUCH HAS CHANGED.

Last night, I accidentally bled all over my duvet cover - the white part. My fault for even having a white part on my duvet cover! And I've been super itchy on my body the last few days. But the top part of my left foot might be healing, so that's a plus!

Onto the next week. I have high hopes it'll keep getting better. My face has been good for months now (I have my face back!), so at least there's that. 

 

My First Dupixent Injection

 
 

The first day

It came in the mail yesterday, packaged to stay cold during shipment. When I got home from work, I put it in the refrigerator right away. I was nervous and excited to do my first injection that night. Unlike most evenings, I continued working in the evening on my computer while on my couch. At 10:30 p.m., I shut it down and went to the fridge to get my Dupixent with my husband - I asked him to be with me for moral support and because he's good at reading directions. It's a good thing I did! He noticed the medicine needed to sit at room temperature for at least 45 minutes first. Boo. No shot on the first night.

The second day (today) 

After misreading almost every step in the FreshEats meal I cooked tonight, I ate dinner and then pulled out the Dupixent to let it warm to room temperature. 45 minutes passed, so I re-read the instructions and chose to inject my tummy (it is indeed as scary as it sounds!). I'm supposed to pinch a chunk of my skin from either my stomach or thigh and pull it out for the injection - how the heck would one do that on their upper thighs? I'm still chunky after having a baby seven months ago, but not to that point! On my tummy, however, I can pinch a ton of skin (AKA fat) out! Next, I disinfect the area with alcohol and blow on it so it's not wet. "Do not blow on it," my husband tells me, reading the instructions out loud. "Oh. But I don't want to do it when it's still wet, because it hurts more," I tell him. I know, because I did my own allergy shots weekly for years. "Let it air dry," he said, reading the instructions out loud again. He really knows how to read every detail! 

 Now I'm ready, but I get scared at the last second and ask my husband to sing to me. The needle is intimidating and big! He sings "Sings a Song of Sixpence" to me and I go for it. It's surprisingly hard to push the medicine down - even though the instructions warned me that would happen. I was holding the needle wrong with my small hands, because I couldn't put enough pressure on the top to push it down. So now my husband is both singing and pushing down the medicine with me. Then it's over! I feel no different, but know it's a big deal. My husband, on the other hand, is focused on how queasy he feels - he hates needles!

Imagining tomorrow

Will my back, arms and legs be clear when I wake up? Will my itchiness be gone? Will I wake up in the middle of the night needing to use my wooden back scratcher? Will I be able to pick out an outfit in the morning without considering if I'll be able to scratch or if blood will be obvious? Will my next shower not hurt? Will the blood stains on my sheets disappear? It'll probably take longer than a few hours for my skin to improve and my sheets won't miraculously clean themselves, but I'm still hopeful for a better tomorrow!